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Old 01-29-2015, 09:32 PM
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Lynn Lynn is offline
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Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
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I started using Tysabri in July 2008. I have only ever had one test - which was in April 2012 (they were not testing titre levels in Australia until very recently, and it was using data this test that they extrapolated my level of 2.406).

When my neuro told me my level last September (2014), I decided I wanted to have a new test done - feeling that it was difficult to make a decision based around 'old' data. I asked my neuro in December if I could do this, and he said 'yes, but they will be unlikely to do another test since you already have a positive result that is over their recommended limit, and although levels change, it is improbable they would drop that far'.
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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