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Old 01-30-2015, 10:42 PM
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Littlepaw Littlepaw is offline
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Littlepaw Littlepaw is offline
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Join Date: Nov 2014
Posts: 1,537
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Quote:
Originally Posted by Always_Believe View Post
Oh, I wish I could utilize my training & connect with different specialists. Unfortunately, I relocated from TN to IL a few months ago and have zero connections where I am. While I'm trying to move forward with my knee/nerve injury, I've been hitting roadblocks where insurance is concerned and have to jump through hoops to be seen by a PCP, let alone get proper referrals to ortho, neuro, pain management & PT. Not even sure my insurance will cover those specialists who have enough knowledge of CRPS to even obtain proper treatment. One hobble at a time, right???
Don't forget medicine is a small world in many ways as far as physicians. I worked in healthcare many years. There is always a guy who knows a guy...it seems like so many of the specialists have people they trained with who have now spread around the country. Perhaps your contacts in TN can still help. If people back there find out you were in trouble and didn't reach out you know they'd scold you. PM is for sure a small bunch. I always find half the orthopedists know each other from somewhere. Don't forget plastics peripheral nerve - the orphan specialty if you can find one. Pick your current contacts brains, call in favors. Also if you are in/near a large city there may be a CRPS support group with knowledge of who is familiar with treating. Call your insurance - self-referral is often allowable and if not early CRPS is considered urgent. See if they will do anything else. In the meantime, move as much as you can, try to keep normal ROM if possible, but avoid flare. You want your brain to receive non-painful sensations if possible. To this end I spent many, many months at a pool, desensitizing my foot and loving on it before being able to walk again. Try different meds if you can, neurontin was bad for me, nortriptyline much better. It can take a few tries as you know. Most of all never give up...
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