Welcome to NeuroTalk:
I too, have a diagnosis of HAE (hereditary angioedema)...only mine is slightly different. Less pulmonary, less blurred vision (only a little with fatigue and only when doing close work), but lots and lots of GI swelling, and terrible swelling with any trauma or invasive procedure. I believe that the angioedema is rather specific to the person, in how it presents. For females, estrogens in hormone products can be contributory.
I can't help with the MG connection, but I certainly can understand the angioedema problem. I just had some dental work, and that put me in great pain (which was more extreme than the procedure), just because of the needles used to numb the area. It can seem like I am crawling out of some kind of "hole" pretty often now, that I am older! I think this is more common than the medical community realizes. So now I am very protective of myself and evaluate any invasive test or procedure. If it is not obviously needed, and only being pushed for money like the endless colonoscopies, endoscopies, etc..I will pass on those. I pass on unneeded radiation tests too.
My swelling problems (knee, ankle, belly, hands, come and go).
Some foods are triggers for GI angioedema... acidic things, fresh fruit and eggs are triggers for those with GI angioedema.
There are some very good sites about it now...one with a long paper on bradykinin, explaining how it works in the body.
I just can't find that one today.... dang.
This is one good site also:
http://www.hcplive.com/publications/...-04/2005-04_02
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
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