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Old 02-03-2015, 12:17 AM
bny806 bny806 is offline
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Join Date: Nov 2011
Posts: 576
10 yr Member
bny806 bny806 is offline
Member
 
Join Date: Nov 2011
Posts: 576
10 yr Member
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Welcome Sandrine!! Sorry, I'm not on here too often these days.. I don't know much about the angioedema, and I am still kind of a mystery myself (with LEMS being top of the list, I get IVIG every 3 weeks).. anyhow.. it sounds like MG could definitely be a possibility.. did they test you for MUSK and LEMS as well?'

Do you have any other weakness, or is it localized to your eye? Does it get worse throughout the day? For me I wake up and can't blink, and once I try a few times, then I can blink again.. Do you have swallowing issues? Have you gotten any of your bloodwork back? A lot of people go to neuroopthamologists for diagnosis with eye symptoms.. do you have one near you?
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AnnieB3 (02-05-2015)