Thanks, both, I've talked with my GP and we'll look for a good pulmonologist. she's going to see if there's a pulmo that has some knowledge/experience in neuromuscular stuff, and will get me an appointment soon.

By the way, my neurologist always does this test, where I have to blow in a tube 2 or 3 times. I really don't see the point, because (as I always tell all my docs), it's no use. It's the forced vital capacity. But, maybe it's just me, but I just feel stupid doing that test.
I mean, it comes out 75%, and they're like: it's mild! And another time it comes out 45% and it's like: oh, so severe!

Am I the only one with MG who feels there fvc differs every hour? I have breathing problems every day, but not every minute of the day.
I hate that it changes so much, because that makes those tests unreliable (though docs seem to rely on them a lot).