Hi Jessiet,
I'm afraid if you look at the Profiles of the posters in this Thread their last activity on the Forum was before 2012, except Burntmarshmallow who was around last October. Perhaps one of the current members, or Administrators have some helpful links.
I know what you are going through, I have trigeminal parasthesia (left side) permanently and Chronic TN due to a knot of arteries round my Trigeminal nerve. I hope you find relief as well as the information you are searching for.
If there is anything else I can help you with, feel free to ask.

Dave.