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Old 02-04-2015, 07:09 PM
tos1234 tos1234 is offline
Junior Member
 
Join Date: May 2014
Posts: 8
10 yr Member
tos1234 tos1234 is offline
Junior Member
 
Join Date: May 2014
Posts: 8
10 yr Member
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Thanks so much everyone for your great suggestions and thoughts. It is deeply appreciated. I have severe bilateral neurogenic TOS and am waiting to hear back from my surgeon (who is regarded as one of the top TOS doctors). I am very discouraged and taking oral steroids as you mentioned kellysf hasn't made any difference yet.

KellySF is there a way to private message you as I was hoping to ask you a question?

Quote:
Originally Posted by Jo*mar View Post
There have been a few members that had unusual amounts of scar tissue build up post op - and quite quickly also..

Did you have mainly VTOS since you were not on pain meds before surgery?

Did you feel your surgeon was highly qualified when you decided to have surgery?
Had you searched out surgeons before hand, or was it a case of possible clotting factors & urgent need?
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