Quote:
Originally Posted by EnglishDave
Daesin,
Having read through my post again it comes across as a bit terse and snappy, I did not intend that - 3 Cluster Attack day - and I apologise. 
Thank you for your concern, I was (and am) actually propped up on my side with my left hand covering my left eye to counteract the double vision caused by a brain lesion…
Anyway, Lidocaine Infusions and Ketamine, remember these for discussion with your new Dr. Both are anaesthetics and have been shown to work well on severe, chronic neurological pain. They even dull down the trigeminal parasthesia I constantly suffer, which can only be described as the 'pins and needles' pain you get in your arm when you lay on it wrong - and the feeling is just coming back. Try explaining to your Neuro that it covers the left side of your face, and when it gets into your nose you want to rip it off and shake it around to get the feeling back - and not sound insane!
I hope your new Dr finds an answer for you, your story shows that one step can change our world.
Dave. |
Hi Dave, have no fear I didn't think harshly of your post in any way. Though it is very sweet for you to be concerned about my feelings. Thank you.
I have the parasthesia in my left hand and shoulder. How can something be numb and painfully tingle at the same time...its just not right. Thank you for the suggestions. I will certainly put those on my list of questions.
Sorry, but the nose thing made me laugh. Not at you -- but just the visual.
I have given up on not sounding insane. They can think I am barking mad I don't care. My ego can take that hit if it means relief. So far there are at least 3 specialists who are convinced I am nuts. I didn't get my Dx until almost a year of complaining about 'weird stuff.' Being told that "those' symptom doesn't happen with a rotator cuff tear or I have never heard of that complaint in my 20 plus years of ortho. No, Dr. I don't know why I am dizzy but it all started when I got up off the frozen ground so I know they are related....the glares you get when you question a Dr.
As many here can understand, I get so tired of hurting all the time then having to fight to be heard and fight the insurance company to pay. I am afraid that I was in a very dark place and vented on my initial post . I am usually much more even tempered and try to use humor to endure. Sometimes there is just no humor.
You are dead on when you say one step can change your world. I am looking for the one step that will make my world better. I will settle for a flight of steps if need be. I have to believe that there is hope. Going through all of this for nothing would be crushing. So everyday I look and search and dig and learn. It is people like you who keep me encouraged. Thank you. thank you!
I hope you have a low pain peaceful night/day...not sure about the time differential.