Hi all. I'm new here and could use some advice.

I was diagnosed with myasthenia about 15 years ago with a positive tensilon test. Shortly after, I had a thymectomy. The Drs said my thymus was the largest they had ever seen. After many ups and downs I started taking Cellcept, went on disability and learned how to pace myself. I have been doing fairly well the past 2 years—occasional double vision, fatigue and voice problems but nothing extreme.

Recently I lost my voice for over a week. I wasn’t able to see my regular dr and went to see someone new. He gave me mestinon but also stated that he did not believe I had myasthenia and ran every blood test imaginable. The other day his assistant phoned, said there is nothing wrong with me and that they would be forwarding this information to my regular drs.

I am still taking mestinon and my voice has returned but I really don’t know what to think. Why would I experience these symptoms throughout the years if nothing is wrong? Why would the medications work and why was my thymus so big? Am I crazy? I really don’t know what to think or do. Sorry this is so long!