Hi, mrzt. Sorry to hear you're not doing well.

Did you know that Valeant Pharmaceuticals doesn't even taste test Mestinon due to the nature of the product? No, it does not have a placebo effect. What it does to people who don't have MG, CMS, or LEMS is to make them have symptoms of an overdose, such as drooling, weaker muscles, etc.

If it were such a benign drug, anyone could buy it over-the-counter at their local drug store.

I assume that you're still on Cellcept? If so, what it does is to make the "signs" of MG disappear, such as the antibodies! This is simple logic. Why don't some neurologists "get" that?!

Having a negative antibody test while on drugs only means that the drug is working. But that does not mean a patient is necessarily symptom-free!!

When someone has chemotherapy and gets rid of their cancer, then the scans come back negative, does that mean that they never had cancer? I honestly don't know what these doctors are thinking sometimes!!!

You are having a return of symptoms and obviously need help. Can you see your regular doctor at some point?

BTW, get copies of those labs that were done!! Do you think he would admit that you had positive antibodies (if you did) after how he treated you?

I hope you'll get someone to listen and to take you seriously. Obviously, you know how this disease works and what to look out for. Please take it easy!

Annie