If your breathing is fluctuating that much, that is very concerning.

I'm glad you're going to find a pulmonologist.

Simply doing the "breathing out" test isn't sufficient. Breathing in can be as problematic. Even my asthma doctor has specialized breathing tests to check for that!

I have both a peak flow meter and an incentive spirometer, which a pulmonologist can give you. While a peak flow meter is often used for asthma, it can also check how your MG is doing. Don't do it a lot and wear yourself out, though! The incentive spirometer is useful for guarding against atelectasis, which some MGers with breathing issues can get. You should talk about that with a pulmonologist, too.

When was your last chest x-ray? I'm not saying to get one—because radiating yourself unnecessarily is silly—but wondering if they've ever seen atelectasis on film.

http://my.clevelandclinic.org/health...ive-spirometer

http://www.mayoclinic.org/tests-proc...n/prc-20013057

If you get dizzy while you do either of those, then don't do them anymore! Your breathing doesn't sound stable, and you really need help soon.


Annie