Quote:
Originally Posted by Enna70
This has been a fear of mine and to hear it first hand I have the greatest sympathy for you....sorry I don't have any answers to give you right now....I was told by my neurologist that CRPS does not cause atrophy....but the medical field doesn't understand CRPS...please keep us posted.... 
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"Making the Diagnosis of RSD / CRPS
The diagnosis of RSD / CRPS can be made in the following context. A history of trauma to the affected area associated with pain that is disproportionate to the inciting event plus evidence at some time for one or more of the following: •Abnormal function of the sympathetic nervous system, e.g., abnormal changes in skin blood flow, sweating or goose flesh.
•Swelling.
•Movement disorder.
•Changes in tissue growth (dystrophy and atrophy)."
http://www.rsdfoundation.org/en/en_c...uidelines.html
Although staging is no longer done (same link):
"STAGE III
1.Marked wasting of tissue (atrophic) eventually become irreversible.
2.For many patients the pain becomes intractable and may involve the entire limb.
3.A small percentage of patients have developed generalized RSD affecting the entire body. "
I'd question how experienced your neurologist with RSD/CRPS patients.
I don't remember Deb posting in a long time. Hopefully she'll pop back in.