Quote:
Originally Posted by Ariadne
Thanks. I don't think it's TN. Symptoms don't quite match as typical, carbamazapine didn't help with pain, and ibuprofen definitely helps. I'm 37 too so TN unlikely at my age!
Discontinued Carbamazapine and it made no difference to facial pain which tbh is no longer a big issue right now - ibuprofen has it under control. Main thing now is tingling, numbness in hand. Other symptoms still there but hand is worst problem as it is quite disabling day to day. (On plus side my left hand becoming nifty of necessity!)
Going back to GP tomorrow for another looksee.
Am in UK so insurance not an issue - God bless the NHS.
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It's good to be off carbamazapine; from a side efx standpoint, it's bad news. And if you really had TN, your description would be of a much more severe pain. But I'd still get that MRI asap. Do you have any general weakness or unusual fatigue over all? Any balance issues?
They still don't know what I have (besides TN). I went from MS to cancer (paraneoplastic syndrome) to now maybe ALS or some other motor neuron disease. I'm still hoping that it's 'only' some form of neuropathy.