Quote:
Originally Posted by juliejayne
I feel for you. I expect to be in the same situation myself after one more visit to the Neuro.
But I can't accept the "it could be worse" lecture. After all if the tests for MG are negative and those for MS, ALS etc etc. It doesn't mean that you haven't got one of these terrible conditions, it simply means that the tests haven't found it yet.
Where is the real world "Dr House" who will move heaven and earth to solve a riddle and find a solution?
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And probably almost kill you in the process. lol
But yeah-- I get where they're coming from, especially if they've never had an illness that couldn't be explained. Everyone I know eventually says the same thing. Surely it's good that you don't have a life-threatening illness.
Well, it would be nice if not getting a diagnosis meant that the problem went away. It just means you still have the problem but no explanation or treatment.