|
Member
|
|
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
|
|
Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
|
Hey Natalie
Quote:
Originally Posted by v5118lKftfk
Sorry, aging post, but I thought I'd lend support.
Yes, when my chemo induced neuropathy first set in i had tingling in my face cheek bones, eye twitching, numb lips (i would drool), tingling in my chest, even numb loss-of-sensation urethra which would make me slightly wet my pants.
This was two days after my very first chemo infusion of Taxol and Carboplatin. My oncologists had never seen such a strong immediate PN reaction.
It seems there is lots of nerve endings in your "openings" such as lips & urethra.
I still have PN in feet and hands but the rest of the areas went away.
Natalie
|
Your taxol/carbo caught my eye....not many of us on this site. My last treatment was March 2013. They did lower my taxol after the 2nd treatment because of minor PN issues. I still have aching in my front teeth and along both jaw lines on occasion. A month after my last chemo I could barely walk....fast forward to Sept of 2013 when I found out via skin punch biopsy that I had no A or C Fibers left in my feet....dx: Severe Small Fiber Neuropathy. My onco dismissed this as being from the chemo and I now have a new onco 
The chemo did raise my A1C which didn't help.
It has spread and is now in my hands and upper right arm. I'm now 52 and on disability.....just started going to a Pain Mgmt Doctor/Clinic last Sept and am having 'some' success with pain control but am still in this house 99% of the time.
Sorry to sound down...it's just one of those days 
Take care.
Debi from Georgia
|