I had my thymectomy in 2005 and they found a Stage 2 malignant tumor. I had 28 radiation treatments and because they had clean margins, I didn't have to do any chemo. I had no clue before the surgery that I had a thymoma. I was diagnosed with mg in 2000 and did okay with Cellcept and mestinon for the first 4-1/2 years. I then rapidly deteriorated for about 6 months and was admitted in May 2005 for my first mg crisis (breathing and overall weakness) They started me on IVIG and increased my Cellcept dosage, and I had a thymectomy as part of that treatment cycle to try and reduce the affect of mg on my body.

My breathing is (and was) affected by mg with any exertion. The breathing problems are coming from your diaphragm which is a muscle. My shortness of breathe with exertion was and is there all the time. My breathing is also affected by stress (actually my mg overall is worse with stress - I just happen to notice it more in my breathing).

Hope you get some answers with the pulmo doc. Good luck!