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Old 02-21-2015, 06:41 AM
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Lynn Lynn is offline
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Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
Lynn Lynn is offline
Member
Lynn's Avatar
 
Join Date: Sep 2006
Location: Australia
Posts: 660
15 yr Member
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Hello MSBelle

My doctor mentioned Lemtrada to me at my last visit - it isn't yet on our PBS (pharmaceutical benefits scheme) in Australia, and has only just been approved for use here (at a very large cost).

It sounds fantastic, but one of the drawbacks is that it can cause other immune diseases - like thyroid diseases and thrombocytopenia (low platelets - where you produce a normal amount but your spleen destroys them, thinking they are 'baddies'). I already have immune thrombocytopenia, so I think my doc won't touch it for me.

We will have to see, he said that even if it takes six months to become available to me, he still wants me off Ty now.

These are exciting times for people with MS, so glad we now have so many options open for us.
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Lyn
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Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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"Thanks for this!" says:
MSbelle (02-21-2015), Natalie8 (04-09-2015)