Hello all, so glad i found this place , I feel so confused and alone sometimes

I am a 56 year old woman who had been in generally good health for ten years except for smoking, I quit the day after my symptoms started.
I suddenly developed vertical double vision in November 2014, first night it lasted about three hours and i went to Emerg. It resolved by morning. Cat scan was ordered, but the double vision became a nightly ordeal. The cat scan with contrast was clear. I also began to feel tired and weak during my normal night shift and not myself. I was afraid they would take my drivers license away so i didn't go back to the doc as quickly as i should have. Within three weeks the DV was becoming worse and i had a spell at work where my legs felt wobbly and i was getting pains in my arms and chest when i exerted myself so i went back to emerg . They did tests to ensure i had not had a heart attack and kept me over night. An MRI was ordered and a few days later my double vision became an all day event so I went on sick leave and that has continued to this day. I also began to have right sided paresthesia in my arm leg and side of face. Sometimes this was severe. My head would feel like it was under pressure. The MRI came back clear except for fluid in mastoids. I was also scheduled for a cardio work up- doppler, echo and stress test and those results were ok. Opthomologist thought it could be a fourth nerve palsy. I was referred to a local neuro but did not see him till February 2,it seemed after i had the clear MRI no one was in too big of a hurry. The neuro tested my double vision and did a standard neuro test and nerve conduction on my right arm only. He wants me tested for ocular myasthenia and I am going to a Neuromuscular clinic , the appointment is not till march 25. He did not do blood work or order a EMG. He said ocular myasthenia was not myasthenia gravis and did not seem too concerned about my other symptoms as i presented normally in his office. Meanwhile i still have the paresthesia and aching in right leg and arm plus when i wake up in the morning my right side feels asleep. At night i get a lot of random twitching in my arms legs and shoulders, even feet, i forgot to tell the Neuro about that . I tire very easily and a short walk to the grocery store can do me in. I often feel stiff in the small of my back and it radiates down my legs. My double vision is still an all day event except for about 15 minutes first thing in the morning and then it devolves quickly. The tingly feeling in my right arm has spread to my chest and down my back. The back of my throat feels a little stiff sometimes but i have no issues speaking or eating. I phoned the neuro office to ask for another consult to discuss these issues but was told by the receptionist that i would need another referral from my doctor for ohip reasons. My own family doc said all these things would be addressed at my appointment at the NM clinic hopefully he is right . Incidentally the orthotic specialist the opthamologist sent me too said I was not presenting like fourth nerve palsy,he was not sure what was going on with my eyes and didn't think prisms would help at this time so I am still wearing a patch. I asked if there is anything else they might consider checking me for besides OM and he wrote down LEMS and said i could look it up. Something else to worry about ! The neuromuscular clinic i have been referred to is considered the top in the province but some of my symptoms do not seem like MG. About 10 years ago i had some of the same symptoms , i had the right side paresthesia, felt dizzy, i had bad headaches at that time but no double vision. All my tests were clear and i slowly got better over the span of about 6 months. I know my docs at that time thought it was all in my head. Since then I have been pretty healthy and had impeccable attendance at work. To be back in this situation is a nightmare. It sometimes feels like gremlins have invaded my body. Any insights or suggestions would be appreciated. This is going to be a long month til my appointment I find it very difficult to talk to doctors likely because of my bad experience from years ago and i want to make sure i make the most of this appointment