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Old 02-23-2015, 07:40 AM
canuckmiss56 canuckmiss56 is offline
Junior Member
 
Join Date: Feb 2015
Posts: 10
8 yr Member
canuckmiss56 canuckmiss56 is offline
Junior Member
 
Join Date: Feb 2015
Posts: 10
8 yr Member
Default Thank you Dave

Quote:
Originally Posted by EnglishDave View Post
Hi Canuckmiss,
Double vision was my first post here, too, but mine is permanent and unstable, caused by a lesion in the occipital region of my brain. I understand how debilitating this is, I have lost my ability to drive completely - prisms and patches don't work.
What I don't understand is why you haven't had the blood tests for MG. They were the first tests done when I presented, followed immediately by MRI. I do not know about your other symptoms, I have had so many neck, head and neuro problems it's impossible to separate new ones out, but the MG Forum Lara directed you to will help.
What I do know is how a condition that affects one's eyesight can impact every other part of life in a very negative way. If you ever need to talk about things, I - or others - are always here.
As for not forgetting things at your Doctor/Neuro appts, make a list of everything you want to ask on your PC, refine it, print out 2 copies and hand one to the Doctor when you go in, reading the other one/taking notes yourself if you like. That way your Doctor knows exactly what you want to know, you don't have to worry about forgetting anything and you will get your questions answered. Don't feel embarrassed or foolish doing it - it also saves time.

Dave.
Thanks Dave for your reply. I live in a small town and when i first got sick they thought it was a mini stroke , the opthomologist i visited has no experience with MG and was surprised when i told him what the neurologist said, i suppose because my eyelid was not involved and my DV was an all day event. I am not sure why the neuro did not order the blood test for MG I too found it puzzling after reading up on this condition. I am sorry to hear about your situation, i understand how vision issues change your whole life. Thank you for the tips on dealing with doctor appts. I get so anxious sometimes my mind goes blank when i finally get in front of the doctor.
Thank you again
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"Thanks for this!" says:
EnglishDave (02-23-2015), ger715 (02-25-2015), Lara (02-23-2015)