Originally Posted by catie

Hi, others have given you some great suggestions. It is important to keep a log of your symptoms, what made them better, what made them worse, etc. Many of your symptoms sound like MG, others not so much.

When I read your post it made me think back to when my symptoms started. Double vision that was mostly later in the day, and then eventually became continuous throughout the day, though worse at night. My doctors also felt it was a fourth nerve palsy when my MG tests initially came back negative. In fact, I really felt that they just used that as a "default diagnosis" because they didn't know what was happening. My arms ached and ached. The docs just thought it was from statin drugs I was taking. Turned out to be weakness in my arms.

Interestingly, I also have the twitching in my legs, feet, and occasionally arms. My neurologist feels that it might be related to fatigue in my muscles. I also had paresthesias and that really cloudied the whole picture. Paresthesias are not really associated with MG; however, you can have more than one thing going on right now. It turned out for me that I also had some peripheral neuropathy.

Hang in there. I know it's hard and the waiting is excruciating. Do keep track of your symptoms and when they occur. When you have your appointment, try to bring another person along to the appointment. Perhaps your partner or family member can concur with your description of events. They also might remember things that you don't recall.

And do remember that symptoms can quickly change. For me, lack of sleep or stress are major triggers. If you start having difficulty breathing do get yourself to an emergency room.

Keep asking questions and using this forum for support. There are lots of great people here.

Cate