Hello to anyone who takes the time to read this post!

I am a 47 yr old mum in the UK with a longstanding diagnosis of ANA neg Lupus. This has recently been revised to UCTD/SLE sub phenotype. I have recently stumbled upon Palindromic Rheumatism on another forum and would be so interested to hear of anyone else's experience.

I have no antibodies to anything, just low C3C4 and leucopenia with intermittent savage attacks of pain, redness and swelling on knees, fingers and wrists primarily. These attacks start dramatically, will reduce me to tears but are self limiting over the course of hours, days or weeks. More recently I have been experiencing muscle weakness, ptosis, resp issues, nasal and oral ulcers, burning nerve pain during flares so it seems likely that I do have some overlap with Lupus but no consultant at any point in the past 25 years as ever mentioned PR.

Hope someone can advise on whether I should suggest this to my Rheumy. Many thanks Clare