Welcome Sherrie,

I know that you will find compassion and companionship here. I second English Dave on the radiation question. I had a plantar fibroma treated by radiation and my radiation oncologist does gamma knife for TN. Obviously your situation is delicate so maybe not an option but worth a consult. Also, not all neurosurgeons are comfortable with peripheral nerve issues. Some are mostly spine guys. Peripheral nerve sometimes falls to a plastic surgeon trained in microsurgery or peripheral nerve surgery. Something else I needed...these specialists are hard to find but they are out there. I required a 3.5 hour complicated nerve repair done under microscope. A lot of doctors would have said it couldn't be done and I did have to travel three hours for my procedure but it was worth it.

Hope you find relief soon,
Littlepaw