I found a letter to your families, which a gentleman wrote and it perfectly explains how we feel and what happens to us when we have a flare up. And hopefully I'm able to post the link.

http://www.rsdhope.org/letter-to-fam...-patients.html

Maybe this will open some eyes.!!

I just have to say this group is AMAZING, STRONG, and INSPIRING!!!



I did a search on the writer of that letter and see someone posted it in 2013, so hope it's ok to have put up the link to it.