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Member
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Join Date: May 2009
Location: Eastern TN
Posts: 314
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Member
Join Date: May 2009
Location: Eastern TN
Posts: 314
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I saw my neuro earlier this week and he agrees I am definitely weaker in my hands, arms, neck and breathing since I saw him in December. I hadn't realized my breathing was being affected, guess I was just worried about the new symptoms! I did the blood test for the JC Virus and the results aren't back yet. My neuro emailed the doc at the Mayo Clinic in Rochester (mentioned in another post) and received a reply in about 2 hours. He agreed with my docs plan as follows: JC virus test, 5 days of IVIG to build up my system and then the Rituxan (1000 mg/treatment - for 4 weeks - then some version of monthly for a couple of months - can't remember if there is a skipped month in there!)
I keep you posted of what is going on - apparently I am the first in this area to use Rituxan for mg (if it all works out), so I'm going to be the test subject.
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