Quote:
Originally Posted by Juanitad
Has anyone here used Rituxan for their mg? If so, what has been your experience? I'm seriously thinking of talking to my neuro about doing a round of Rituxan shortly. All the research I have done indicates it is very helpful for mg patients and I haven't seen any major side affects.
For those not familiar with my history, I was diagnosed in 2000, had a thymectomy in 2005 and have been on almost all treatments for mg; mestinon, Cellcept, IVIG, Cytoxan, and Imuran. Recently, my arms, hands and fingers are being greatly affected by the mg, which is a real bummer because I love to quilt and cook and I need my hands and arms for both. I have dropped many things (at home and in stores) and I need to be extremely careful when carrying hot pots of food from the stove to the sink.
Just wanted to know anyone else's experience with Rituxan and if you considered it but decided not to use it, I would like to know your reasoning.
Thanks for all your help and stay warm and dry!
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In April of 2014, I went into crisis, ICU for about ten days. I had just been diagnosed with mg. the mestenon I believe triggered the crisis. I had eleven plasma pharisees while at hospital, sent home on prednazone.....
by October 2014 I again was in crisis,checked in to Barnes in st louis. My new neuro, gave me 5 plasma pharisees, and
my 1st infusion of retuximab/retuxin....
two weeks later a second... 1st week of Jan 2015 another, and am getting a final in March for now.
So far many results have been good. After years I no longer have dbl vision. I have some strength each morning now. Not choking, not vomiting, gird is gone, slurred speech is gone..i still have problems breathing, wheezing, my diaphragm is not working correctly and I am having congestive heart failure which developed over the last ten months.... I am in the process of scheduling for a defib/pace maker. but I keep asking about more pharisees first as these conditions disappeared after the eleven in the spring, but only for a few weeks....