Quote:
Originally Posted by Stuart2
Hi:
I've had idiopathic PN for about 2 and one-half years. Is it worthwhile to get a full check up at a major clinic?
So far, my symptoms aren't severe--partial numbness in feet and hands, dryish mouth and eyes, acid reflux, occasional brief random shooting pains. My feet do hurt quite a bit when I am on them too long. I'm a teacher.
Tests did find mild nerve damage. But all of the other tests are negative.
Currently, I can dance, garden, bicycle and do whatever I want. Am on no medications except Prilosec and occasional aspirin or ibuprofen.
I am very lucky compared to many PN sufferers!!
My worry is that things keep gradually getting worse and I personally know some long term PN patients who are pretty much crippled by PN.
I feel like now is the time to do something. But my hunch is that I have something going on that is not going to be curable.
Is it worth it to go to a major clinic? Which one? I have good insurance.
I live in Wisconsin. Thanks! Stu
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I am not recommending any particular hospital. I went to small town GP and Endo but only after I went to large teaching hospital did I learn about the kinds of blood tests that are available. I was told to stop taking Zinc (how did I know that there is a copper-zinc ratio) I also learned that I had Amtotrophy plus Multifocal PN. IMHO if you have your ducks in a row and do what you can now, years later you won't be beating yourself over the head. I was a diabetic that was playing games with my Dr. and payed the price. An ounce of prevention is worth a pound of something or other. Good Luck, Ken in Texas.