Hey healthgirl
My doc did almost the exact same thing! The last time I was in the office and we were talking I said something about not understanding how I could have all of these symptoms and it not being SFN and he turns to me and says "Oh YOU HAVE SFN" and then he updated the online thing from nonspecific neuropathy to idiopathic small fiber neuropathy. I was so confused too. I don't have any answers for you I just thought a similar experience might be helpful.