I have found that communication is the worst with our type diagnoses and symptoms.

I almost think that they are so stressed about thinking about our symptoms that silence or discounting our symptoms are their defence mechanism. They can't do much to help beyond testing and more medication.

I hope you are better soon.[/QUOTE]

Thanks,
I think he feels sorry for me and just didn't want to lay it on me face to face. He saw how my hands are trembling now and my limbs are so weak. He just side stepped the question of "what is going to happen to me?" He just changed the subject.
I have an appointment with another rheumatologist next week. She is very young, so maybe she will be willing to expend some energy on at least trying some treatment. Then again, I think maybe my luck might be better with someone more experienced, who would think outside the box and look at me clinically.