Quote:
Originally Posted by Stuart2
Hi:
I've had idiopathic PN for about 2 and one-half years. Is it worthwhile to get a full check up at a major clinic?
So far, my symptoms aren't severe--partial numbness in feet and hands, dryish mouth and eyes, acid reflux, occasional brief random shooting pains. My feet do hurt quite a bit when I am on them too long. I'm a teacher.
Tests did find mild nerve damage. But all of the other tests are negative.
Currently, I can dance, garden, bicycle and do whatever I want. Am on no medications except Prilosec and occasional aspirin or ibuprofen.
I am very lucky compared to many PN sufferers!!
My worry is that things keep gradually getting worse and I personally know some long term PN patients who are pretty much crippled by PN.
I feel like now is the time to do something. But my hunch is that I have something going on that is not going to be curable.
Is it worth it to go to a major clinic? Which one? I have good insurance.
I live in Wisconsin. Thanks! Stu
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I also live in Wisconsin. The Mayo Clinic Health System, where I live, misdiagnosed me as having "Idiopathic Peripheral Neuropathy". After going to a different health-system not connected to Mayo, a skin biopsy was done and I was found to have Small Fiber Neuropathy which is quite different than PN but does cause PN type symptoms. Have you had a skin biopsy done by a neurologist in order to, at the very least, rule out SFN?