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Old 03-03-2015, 03:38 PM
glassmom glassmom is offline
New Member
 
Join Date: Mar 2015
Location: texas
Posts: 5
10 yr Member
glassmom glassmom is offline
New Member
 
Join Date: Mar 2015
Location: texas
Posts: 5
10 yr Member
Question Waiting on EMG for dx but symptoms progressing

I do not have a firm dx yet. I started having double vision in may of last year, off and on, and went to see my opthomologist. He sent me to a strabismus specialist who suspected either thyroid eye disease or Myasthenia gravis. She ordered basic blood panels for both and they were both negative. I have two autoimmune conditions already ( Psoriatic Arthritis and Interstitial Cystitis), and because of some of the immune meds I have been on in the past (Humira, Enbrel, Remicade) that can bring on MS, My Rheumatologist became concerned, and ordered an MRI of my brain to rule that out. I was also having balance issues at the time and some slurring when overly tired. The MRi was normal. So he then sent me to a Neuroopthomologist. I have been on a trial of Mestinon, with some effect but didn't help much, and gave me horrible stomach cramps, so now I am waiting on EMG studies that are scheduled in May. The double vision is getting worse, and now have had several times where it feels hard to swallow. it is very slight, but it feels as if my food is too big and too dry, when I know it isn't. So, for now, I am just trying to take note of all of my symptoms and learn all that I can. Since I already have two autoimmune diseases, I already deal with extreme fatigue and a whole host of odd symptoms and it makes me wonder how many may have been mg but I was attributing them elsewhere. I have also been haveing problems with shortness of breath off and on for the last year, and my pcp had dx me with adult onset asthma, although I never have any wheezing, just short of breath and feel like I cant get a deep breath. I also sometimes have problems getting a breath in the middle of the night when i am laying down. My EMG appt. is not until May, so feeling a little worried. Any words of advice would be appreciated. Thanks.
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