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Originally Posted by Healthgirl
Does anyone think its worth it to see a hematologist for their opinion? I feel like I am exhausting my options, but I'm still in the beginning of this journey. I haven't accepted idiopathic and progressive.
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Doesn't sound particularly useful to me, but maybe some others can chime in. He is unlikely to know anything about PN. But if it is not a hardship on you then you may as well get some tests, although I think your time would be much better spent seeing a clinic that specializes in neuropathy.
Doesn't mean a great deal to you, but when I visited Mayo they discovered that I had iron deficiency anemia, which I would think would affect oxygen transport, but the neurologist said that he could not connect this with the PN. It has since corrected apparently. May have been due to giving blood regularly. Don't have any other explanation. Then a few years later I had a low white cell count. So it seems something weird has been going on with my blood, but no health problems other than the PN.
Ron