Senior Member
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Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
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Senior Member
Join Date: Jan 2008
Location: at home, of course
Posts: 1,140
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I'm on it, for approx 1.5 - 2years. The first several weeks (maybe 2-3 months if I recall) were full of bad gut pain. They now have learned that many patients need longer than 1wk on the starter dosage. I get burning & flushing from upper chest to top of head, but much less often than the first 6 months or so when i got it every day. I learned to use cool wet cloths and ride it out- sort of like a wicked sunburn feeling on my skin. They are short lasting for me (5-15 mins)
I choose to stay on it so I (hopefully) progress as quickly or lose more of my abilities.
I honestly could have cared less about which drug I ended up on, as long as I could afford it and my neuro also thought it was good. I ended up with Tec as they arranged for a grant to pick up my coinsurance amounts.
Bonus- it cleared up my psoriasis! and is an oral.
Good luck!
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Jane
Cleverly disguised as a responsible adult!
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