It's very nice to meet you, but I'm so sorry for the reason that brought you to us. I can hear the fear and desperation in your words. I know what it's like to be scared and in severe pain, and not know what to expect for the future. I've been ill five years and still haven't received a diagnosis yet. But a person can learn to live with these things, even if life's not quite as good as it was before. I hope and pray that you'll feel better, and find all the answers that you're looking for. And I really hope that someone here can give you better advice than me, since I'm not familiar with your condition.

Sending you best wishes and prayers...

Idealist