Quote:
Originally Posted by canagirl
I thought small fiber neuropathy as well (b/c what else can cause all these symtpoms?!!!?) However, the neurologist doesn't feel I have this b/c her clinical testing shows no evidence. I'm trying to get the test done on my own but it's really expensive $2000US dollars. Not only that, this test isn't performed here in Canada, there are twp dr's that will perform the biopsy and send it to the US but trying to get in is impossible.
Has anyone else been diagnosed with SFN when their neurologist said "I don't think so"?
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Yes, mine said my symptoms were skin disturbances and alluded to me being anxiety ridden and causing my symptoms. An internist luckily FINALLY listened and did the skin biopsy, and now there is a little difference in the way I am treated.
I have progressed and now have autonomic involvement too.
Hope you can get someone to listen to you soon.