Lastly, everyone's symptoms are different but I never had swelling of any magnitude either. I do have pain, temperature and color changes. Take a look at the Budapest Criteria and see where you fit. Keep taking care of yourself. Take what you need to manage pain but remember that there are a lot of med options. My mood went to hell on neurontin which is great for many people. Nortriptyline at bed happens to be better for me. Get your workup to be sure they didn't miss anything and DO NOT GIVE UP. Odds are in your favor to improve. Most people with CRPS get better over time. Stanton-Hicks and many other bigwigs support this.

Hi Little Paw,

Who is Stanton-Hicks? And, has he or she published anything about this? I'm just curious. If it's anecdotal that's fine by me, but I've always wondered if there has ever been any long term follow-up of CRPS patients. Getting better over time is certainly my experience of CRPS. Mine was diagnosed following hand surgery 25 years ago.

Thanks,
Darcy