Hi Lou Lou- your story sounds very familiar. I also recently had a skin biopsy carried out by a renown professor in London! Still waiting for my results. I already have an autoimmune disease called ankyosing spondylitis and the more i read the more I keep coming back to sjorgens too. I have awful burning, stabbing, numbness etc permanently in my legs and autonomic ymptoms such as tinnitus and electric sensations throughout body. Thats just some of it. I would be curious to hear how it goes with any diagnosis. My rheumy just wont consider anything else as I have ankylosing spondylitis and everything is attributed to that. One treatment for one doenst work for another so knowing the exact cause behind these things is of course a desire for all of us.
I've done a fair bit of research on treatments for sjorgens itself and am confsed about what there is and what is effective.
Hope you are managing pain ok. I have found gabapentin to be a real help, I am on 2700mg now. I have just started going into a hyperbaric oxygen therapy chamber. Im going an hour a day every day for three weeks. Its offered at my local MS centre. Although I dont beliee I have MS, they have acceted me to use it based on my neuropathic symptoms. I have felt alot better this week and I started the therapy this week. Cold just be that I upped my gabapentin and am taking alpha lipoic so dont know what might be the reason for the pain relief.