Quote:
Originally Posted by LouLou1978
Thank you everyone. I have just chased up the Rhuemy and am having to wait until May for the lip biopsy thing for sjogens syndrome.
I hope to have a neurology appointment in April with results of my Fabry, voltage gated potassium channels and also the voltage gated sodium channel results. I will update you all with everything.  |
Forgot to add - if you don't mind, could you keep us posted on any suggestions your rheumy makes ref addressing the route cause (if possible). All discussions I have with gp's focus on managing the pain. My rheumy has talked about treatment using humira (an anti TNF blocker for certain autoimmune diseases) - I do however worry about the impact this sort of thing has on neuropathies as I have read reports this can excacerbate that. (excuse all typos!)