richardbrock,

Welcome to NeuroTalk. I am sorry to hear about how you were misdiagnosed or even negligently diagnosed so long ago. Many of us have had an uphill battle with the medical professionals as we seek a diagnosis.

At this point, it probably is impossible or at least extremely difficult to find a cause of your injury. Even with a known cause, it would not change anything.

Have you had any professional assessment of your abilities and disabilities ? There may be some therapies that can help you. A neuro rehab hospital would be a start. Such a rehab hospital associated with a teaching hospital may be good. Or, a college that has Occupational Therapy and Speech therapy programs.

Your writing shows you are still very functional, even if it took you a long time to compose that post. It sounds like you have taught yourself excellent coping skills and work arounds. Good for you.

I have a friend who took 10 years to get through college after a severe brain injury. I know others who have been able to serve the brain injured community because of their experience and perspective.

Please, never give up.

My best to you.