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Old 03-08-2015, 12:50 PM
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
MAT52 MAT52 is offline
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Join Date: Feb 2015
Location: Scotland, UK
Posts: 529
8 yr Member
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Quote:
Originally Posted by canagirl View Post
also, what are the horrible side effects people experience and on what medications? I can put up with a lot of side effects if they take away the pain. What I'm worried about are the serious permanent effects like, akasthisea, ataxia, movement disorders... Anybody experience anything really bad like that?
Like many here I try not to harp on unduly about the awful side effects of drugs because I know I'm unusually intolerant and don't want to put people off drugs that may well help them tremendously. In my experience of pain - whether neuropathic, joint, headache or GI or other - it is very subjective so what one person can tolerate is very different to another. I have had three babies, two very large, and only had a bit of gas and air for one of them - the other two were both born the wrong way round and it was exceptionally painful. So I think I have quite a high pain threshold but a very low one for tolerating drugs - whether they affect my skin, my hair, my tummy or my mood - I hate feeling that I'm poisoning my body - try as I have to see these drugs as my magic potions.

For me the best of the nerve pain symptomatic drugs was Amitriptyline which I took for three years. I discovered by accident (forgot to take them away with me!) one day that it was causing the heart palpitations which were pretty
heavy going so I just had to stop.

I have a conflict here because I wouldn't want anyone to be in pain unnecessarily but some of the drugs I've been prescribed have been very problematic - swelling of the face and neck and ears, awful red itchy rashes, nausea and sickness both ends 24/7, drunken dizziness and anger, nose bleeds, hives - you name it I've suffered from it. One Parkinson's drug I was tried on for RLS had me falling asleep on the middle of a beach in the rain while walking the dogs! So I wouldn't know where to start with advising you - this wouldn't be appropriate I feel as these drugs are well tolerated and very helpful to many. It's not that I'm not in pain - it's just that the way I respond to pain might be very different to the way you do.
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Sjögren’s, Hashimoto’s and Systemic Sclerosis with Raynaud’s, Erythromelagia and small fibre polyneuropathy, GI problems top to tail, degenerative disc disease and possible additional autoimmune diseases
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