Hi Shelley --

It's nice to meet you. I'm sorry you're having these issues. Are they trying to figure out what's going on with you?

I spent many years and had a lot of testing done before it was determined I have MD. It's pretty rare to find adults suffering from this as it's more common to see children with the disease. But, there are some forms of MD that don't surface until mid to late adulthood. Based on my history, I have most likely had this since birth, but it was mild enough during my childhood to go unnoticed (I was just considered the weakling kid). Unfortunately, I'm in my mid 40's now and the disease is progressing pretty badly. I'm in the process of trying to get a power wheelchair as I am having so much trouble walking. Luckily, I have a great family with a lot of support so that helps me.

I look forward to talking with you as well.