I can't thank you enough for this response!!!! I think maybe as I read I learn that although she has had this for 2 years, she has continued to use her arm..cheerleading etc. Maybe that's why she hasn't progressed to the point hwre she has untouchable skin?? I just really don't know. I am going to look into Dr Chopra that you suggested. We had nerve tests done, and luckily no nerve damage. I am at this point considering contacting the May Clinic. It is 10 hours away.. but I cannot find anyone in Nebraska to help and guide me. Again.. I tahnk you from the bottom of my heart... I wish I could yake this myself and spare her, but since I can't I will be her advocate and we WILL figure this out!!