Quote:
Originally Posted by pingpongman
Your husband needs to understand your disease as well as you. He needs to study and read all he can. My wife goes into all my doctor appointments. She now helps me with this disease. She can tell when I need rest and helps me stay in control of this crazy disease. Remember first blood work usually comes back negative. Get your husband on your team.
Mike
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Wow, that's nice Mike. I go to all my appointments by myself as he always has to be in the office. He helps a lot with our 2 year old though when he is back from work. Also food shopping, laundry and in general house duties are mostly his responsibility. Is that true that most people test positive for ACH and not for MUSk? my doctor said 80% of MG patients test positive for ACH and remaining 20% for MUSK. I would love to be healthy again but that's not the case so I'm hoping Musk will be positive so I can get official diagnosis from my doc and treatment other than Mestinon.