I guess no more summer trips to the beach this summer. Thanks for a warning Mike.
Something scary happened today, I had to pick up my little one and when I was driving back home i all of the sudden started feeling so tired and weak all over my body that I couldn't even press on the gas pedal to drive faster than 20 mph. I couldn't risk it with my son in the car so I pulled over and called to be picked up. So frustrating and upsetting.
How do you live your every day lives with this disease??? You are feeling somewhat ok and all of the sudden weakness attacks you with so much power that you can't move your body or even talk. I'm sure you guys are still trying to work, spend time with your family and do stuff that other non-sick people do. How to make it all work ��.