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Old 03-13-2015, 08:51 AM
Healthgirl Healthgirl is offline
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Join Date: Dec 2014
Posts: 791
10 yr Member
Healthgirl Healthgirl is offline
Member
 
Join Date: Dec 2014
Posts: 791
10 yr Member
Default Now she wants me to take mestonin

I didn't want to side track the plaquenil thread because that is a separate conversation.

I have autonomic dysfunction that causes such dizziness, and fatigue that sometimes chewing and swallowing makes me feel that I will pass out.
I have to lie on the floor many times a day to get my breathing, spine, and muscles back into some sort of working order.
I feel as though I've been blowing up balloons to the point where if one didn't stop they would surely pass out. It seems to be relieved only by lying on the floor and pulling my knees in with my neck very straight. This is part of the reason I feel that I have some sort of cord compression, but of course no dr. wants to listen to me and that's another conversation.

Anyway, my neuromuscular doc wants me to take a low dose of mestonin to help with my autonomic problems.
I always get everything filled that they prescribe, have a little chat with my pharmacist and then put it on my shelf not knowing if I'll try it or not.
My pharmacy didn't have this drug and they had to order it. My pharmacist was pretty surprised to see it prescribed, but he said they are finding new uses for it. He said it is a pretty harsh drug with lots of side effects. I did not like the face he made when he looked at this prescription.
I just hate this so much. I am not giving up on seeing this as an illness that my "sick nerves" will recover from, but it's been 7 months of hell and I am not doing myself any favors being a tough guy.
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