Quote:
Originally Posted by Kitt
Welcome rdreher1976. 
As you can tell from my signature I have CMT (Charcot-Marie-Tooth Syndrome). I assume that is what your son has from the subject. There is at least one more person on here who also has it. There are many types of it as you may know.
Does anyone else in the family have CMT or symptoms such as your son? You could talk to his neurologist or AFO person as to what might help. Perhaps he needs a different set of AfO's. But it seems legs and feet hurt regardless if on them a lot. |
Yes its the mutated x cromo. Mostly males in family.we have been to nuero (yearly) and afos on 4th set.... Just started working and I know over use is just as bad as no use so I'm just seeing if other people are trying other things to feel better...