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Old 03-15-2015, 10:11 PM
ger715 ger715 is offline
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Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
ger715 ger715 is offline
Magnate
 
Join Date: Jul 2011
Location: Illinois
Posts: 2,180
10 yr Member
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Quote:
Originally Posted by Liftyourhands7 View Post
My neuropathy started over 3 1/2 years ago, I have full body SFN, I thought it couldn't get any worse but it has, the pain is so much worse, the intensity started getting worse about a month ago. I had to double my Gabapentin, has anyone had this happen to them. My pain level
Stayed stable for about 2 years, it was bearable,although uncomfortable, but now I almost cannot stand the pain! Why can't these Doctors find out what is causing this. Can SFN cause muscle pain along with all the sensory
Problems I'm having? I need help with all of this pain! I am going to the Mayo clinic in July, that's the first available appt. they have. If anyone else has any suggestions I would appreciate it. I am raising my 3year old and 5 year old grandchildren, I've got to get this pain under control! I'm
Desperate!



Unfortunately, the only way I have been able to keep 24/7 pain tolerable is with Oxycontin and Percocet. I have, in the past, done all the injections with my Pain Management doctor, as well as a trial SCS which did not go well. I am not aware of any type of cure whether SFN or PN.

Many of the meds we take for other conditions can often add to muscle pain. Since starting a new prescription for a dermatitis condition, I have noticed additional muscle pain.

Sorry you have to wait so long to go to Mayo. I am interested in learning what they would suggest.


Gerry
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