My experience was testing, testing, testing...and then "sorry, we do not know." And that was it. No further testing necessary. I was told it might improve, it could get better or it could get worse and there was no indication which direction it would go. It was the oddest experience of my life. Could they really know so little about a disease, how to treat it and its prognosis? The answer is yes and it's called peripheral neuropathy.

Ironically, even spell check on my computer flags the word "neuropathy".