Originally Posted by Susanne C.

Sorry, mine is hereditary, CMT type 2, axonal degeneration. I repeat it so often i figure everyone gets tired of hearing it.
It is incredibly frustrating, but Mrs. D.'s advice is spot on. Many people never get a clear diagnosis. Lots of cases remain idiopathic, progressive, and untreatable. The push in the early days is to find out if your symptoms have a definite cause and treatment plan, the earlier the better the prognosis if you are one of the lucky ones.