View Single Post
Old 03-19-2015, 09:47 PM
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

Quote:
Originally Posted by xrox View Post
Susanne, is your CMT type giving you issues with muscles as well as nerves? Since my issues seem to be with sensitive nerves (carpal and tarsal tunnel with widespread tinel sign) I wonder if I have HNPP.

http://ghr.nlm.nih.gov/condition/her...essure-palsies
Yes, I have extensive muscle atrophy, with limited range of motion in arms and legs, completely unable to move toes, barely able to move ankles, and progressing. Neuro at Johns Hopkins suspected HNPP as well and I had the test done for it as he found pinched nerves everywhere he checked with EMG, but test was negative. Simple but expensive blood test will tell you.
Susanne C. is offline   Reply With QuoteReply With Quote