Quote:
Originally Posted by Susanne C.
Yes, I have extensive muscle atrophy, with limited range of motion in arms and legs, completely unable to move toes, barely able to move ankles, and progressing. Neuro at Johns Hopkins suspected HNPP as well and I had the test done for it as he found pinched nerves everywhere he checked with EMG, but test was negative. Simple but expensive blood test will tell you.
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I don't have any weakness or atrophy yet. When did you first notice the muscle weakness/atrophy as a symptom? Is there a chance the progression will slow/stop?